Dear colleagues, doctors, patients and parents,
About a year ago was the official birth of the LIFC (Italian League Cystic Fibrosis Calabria).
remember that beautiful moment when the Calabria region, only then to have no association took its first steps and make a big jump in fact the creation of LIFC.
now there was all the aging and the birth of this Association was also hailed as a distinguished and innovative and bold step, in fact, the President-elect supported President-Patient formula a formula which I always considered useful and effective because the patient was acting in the first line and knew more than any other of problems that plagued the "colleagues" and their families.
The task that I was singled out by the members was a thrilling surprise, but not without some problems, but full of enthusiasm and desire to do my part that is of excellent staff, the team looked unbeatable and well-trained and the atmosphere at the time was one of great trust.
Way however it is presented now fraught with bureaucratic difficulties, in particular, a year was too little to compete with the partnership program, which boasted the highest seniority, I realize that you could do better and that those who have placed confidence in me is remained a little disappointed, but we have moved in silence, but we moved, the things they hold most are the hardest to reach.
After a year I take stock and the climate has definitely changed, many things have changed and the climate of peace has turned into an atmosphere of detachment, passivity and demoralization.
I realize that all are in a hurry but it is not easy to just those inside can know that I'm telling the truth.
aspired to an association as strong as the Sicilian and the Verona where all work together, but here the reality was very different, often delegations in the area were invited by me personally to work together because we needed their experience by being rooted in the territory for some time but unfortunately this did not happen, indeed, some groups have been created but have clashed so hard with the Association, in my opinion was seen as something he wanted to absorb everything but no because it had only ever talked about any of this collaboration.
The two fund-raising events conducted by my association showed almost this feeling of detachment and intrusion of rivalry with others.
For a variety of reasons which I will list, I came some time ago to submit my resignation as President, however, immediately rejected.
For a while I tried to understand and make them more participatory, not to argue and not to respond to arguments made against me, so I thought I could turn the tide ... but recent events have brought back these days clearly I figure that the President is considered only symbolic and nothing more.
All this led me to reformulate my irrevocable resignation, I would say that when something breaks it is better to throw it away.
However, it is right that you know the reasons that led me to make that choice for me, very painful.
- The first reason comes from my pathogenicity, I am affected and colonized by germ poliresistente.
This has always been a big handicap for me, I'll never understand, it is understood only when one falls and then to fall if it is not your fault but neglect had against you ... well then you understand me a bit '.
The protocols for cross-infections are always very exaggerated startle, and so obviate the need for CF people not involved in this issue.
This my situation right now has been a source of limited activity on my part because I could never attend meetings of the National LIFC very important because there are learned many things that can not then be explained by third parties.
This is still limited because the Directors of the National LIFC another patient was present president (Bangiau) and even though we were two, and with proper precautions (masks, far away and sit with open windows etc..) has not been able to overcome the obstacle ... but even the most well LIFC NATIONAL enter in contradiction organizing a May 17, 2010 Rome's first national meeting of adults with CF.
Although the protocols are implemented to me you can not say that we do so for a significant number of CF patients some of which are unknown to all colonized by bacteria poliresistenti, the same they will say that not even during the evening meal have been implemented even more necessary precautions.
come again to establish that a colleague of mine ... .. come to sadly lacking recently also presided in the assemblies of LIFC while colonized by these bacteria.
The fact continues even in the event of October 23, 2010 when it comes my friend Guido Passini known for writing poems and books published on the FC, it seems that patients and parents will meet in a chapel, then I wonder if the protocols are adopted and implemented a personal basis.
The President having to do the symbolic service and half then I think it is counterproductive to the associated task.
-The second reason stems from my time available.
Unfortunately when I was given as President I had work commitments that I have today, then I had to manage a local, now I have two and you can imagine how little time I have available.
The association needs a president who has a bit 'of time to devote to the association ... in fact this is very difficult for me the only time to program a simple assembly, I create huge problems.
- The third reason for this is not the least important fact as touching on the moral factor is the lack of collaboration and diatribes born with some CF patients.
- Someone called me a little humble, devoid of envy and self-sacrifice .. I'm not at all so the testimony of people who know me in the normal but especially in hospitals can make faith on me.
- I'm very gentle and understanding, however, extremely sensitive and when I see that someone wants to fool react very hard.
- That was evident during the recent events ... we were ignored, pushed aside as non-existent and even the words used were very pleasant from its people who wear the same problem.
- This made me very upset because the bad manners to demand. ... And do not say what, you want to work around has recently exceeded all limits.
- I clarified and extended his hand but then I was attacked again, and especially passing yet ... I wonder what I'm doing as President if we all deep down for those who a reason for those who seek to override another in a very clear ... in so doing you a disservice to my person but also a very disrespectful to the members.
- not you go anywhere with this war between us, I was poor but I always have to hurt to get some news or events only for that of co-workers or looking through the PC.
- Yet all those involved in these tricks they know and are aware of the presence of an association and a new one and because of this you should lend a hand in my opinion.
- I was always inclined to the formation of groups and initiatives, however, can not stand the arrogance of certain claims of certain people also embodies the arrogance that over the competition and rivalry, the desire to excel also be supported by people who openly takes sides in the game of hide and seek and solidarity with these people.
I hope I have explained very eloquently the reasons that prompted me to submit his resignation.
I'll stay always on hand as an associate of the association to give my humble contribution I am sure that my successor will have the experience and strength to fly higher than this association, to take her by the hand and lead it to the resolution of some important projects undertaken for the good of all.
This rejection in the hands of Vice President Julius Vrenna my mandate to temporarily replace me waiting to make a new division of associative positions
I am aware now that I no longer have incentives to continue an adventure that has become harmful to the life of the association and myself.
Thank you and I will always be very grateful to all those who have believed in me and gave me a year to a wonderful experience ... even if it lasts, I close with the phrase has become my ritual THANKS for letting me touch the sky A FINGER.
Thank you ... ... ... ... ... ... ... ... ....
Calogero Antonio Benedetto
